How 'Everything Ellie' began...
“Life is always better at the Beach” they say and being faced with the news that Ellie’s secondary Leukaemia had returned and treatment would be stopped so heading for the North Devon Coast, Ellie’s go to place, seemed the perfect thing to do.
Ellie had been under treatment for Cancer and Leukaemia since aged fourteen, spent her sixteenth birthday on the oncology ward, then 3 months later looking forward to her trip dog sledding the terminal diagnosis came as a huge shock. It was the most surreal time, we had expressed that Ellie wasn’t told of how long she had, it was too much for her years and the weeks were going so fast, eight weeks later she was gone.
During the 18 months treatment, we had missed a lot as a family, cancelled holidays, plans were ditched at the last minute, infections came at the wrong time and we just stopped planning anything nice, it has a big impact on the family unit, the childhood you’d planned is lost on both the child on treatment and the siblings.
Having had a ‘How about a Landmark’ conversation, the Beach Huts at Saunton Sands beach were mentioned by Ellie. We penned a letter to the owner of the beach and to our amazement a hand written postcard was received within days, Ellie was so pleased to receive it. It wouldn’t come to fruition whilst she was with us but that Spring (2015) we chose Beach Hut No 20 at Saunton Sands to be a summer escape. Our family and friends were planning BBQ’s and cake sales to raise the rent and families like ours would be able to use it for a simple day at the seaside, tranquility, simple and relaxing.
Our community came together like no-other and our charity Everything Ellie was born, our short term plans with the Beach Hut were welcomed and great family memory making days were being made for families with terminal or life threatening illnesses, ‘Our day felt like a holiday’ one visitor wrote. The funds grew and before long we had to make bigger plans which would be our own holiday home in North Devon for longer stays with one very important rule..... they’re would be no cancellations just postponements and if a families plans had to change last minute than so would ours and they would have the next availability.
Our beach hut at Saunton Sands Beach North Devon is for families, carers, siblings and community groups to spend a day away, enjoy the natural beauty that it provides and create lasting happy memories together, to relax & take in the view.
There is much benefit to being on the coast and there is something about spending a day here that feels like a holiday.
Sometimes you have to accept we can’t beat the tide, you
have to just wait for it to come in and see what it left behind
– for our family it left us, our friends and community a
Landmark to create and a promise to help you make the
best time of your worse time.
All services are free for the visitors, referrals are made
through a professional working with the family, health care
consultant, hospice or hospital ward.
All in memory and honour of our precious girl, Ellie Easton x
The North Devon Community have exceeded all our expectations and in June 2019 we opened Ellie’s Lodge, open to take families at Stowford Farm Meadows, Near Combe Martin, close to some stunning loactions.
Providing short breaks for South West families with children on treatment for life threatening illnesses, Families where a parent is terminally ill and has dependant aged children and those families with this criteria who have been bereaved. Referrals can be made through a Consultant, School, Hospice, Social worker.
A 6 person self contained Lodge with all home from home equipment, bedding , hydro spa, and BBQ set in a beautiful location set in the Devon countryside. There is horse riding stables, indoor pool, pet area, parks, crazy golf and ‘pitch n put’ walks, pub dining, takeaway and a shop (Opening times of facilities are depending on the time of year and some activities are chargeable) and seasonal entertainment for more information about whats on go to – https://stowford.co.uk/north-devon-campsite-facilities/
We cannot thank you enough, some amazing events and fundraising has happened over the last 4 years Eating Cake, Baking Cake, Skydive, Tough Mudder, Golf events, BBQ’s Cycling, Swimming, Running, Boling, Pushing a Prowler, Football….lots of Football, Motorbiking, Ferret Racing, Head Shaving, Busking, Dancing, Singing, Baton Twirling, Theatre Shows, Playing in a Band, Bingo, Quizing, Fashion Shows, Photograph taking, Jewellery Making, Beer drinking, just Selling, Curry eating, Raffles and Wellbeing. Volunteer groups Grants, Councillors Grants, Just Giving & Partying at the Manor all to get us where we are.